The Immune Deficiency Foundation was founded in 1980 by the mother of a newly diagnosed—and chronically ill—child searching for answers to her questions about primary immunodeficiency (PI). Today, the foundation is the leading source of information for persons looking for their own answers to questions about PI. Whether you’ve been recently diagnosed, you’ve been living with PI for years, or you think you may have PI, we are here to help. IDF offers programs designed to engage, connect, and empower families to live longer, stronger, and healthier lives. For more information on IDF and all we do for people living with primary immunodeficiencies, visit https://primaryimmune.org.

IDF Friends is a private online community created to provide the PI community with the best and latest resources for support. The discussion forums on IDF Friends are completely private—only registered members can access them—and provide a secure place for the community to support one another. IDF Friends can help you connect with others in similar situations, share stories, ask questions, get support, and more. 

IDF Friends is now the new home for Get Connected Groups, bringing together even more opportunities for the PI community to connect and find support.

Are you looking for a post from the previous version of IDF Friends?  Click the link below to access that information in a read-only format. You will be able to access this link until May 1st, 2026.  
Archive IDF Friends

Moderation policy

On this platform, we will be following a graduated enforcement policy.

• Respect others. Focus on the content of posts and not on the people making them. Please extend the benefit of the doubt to other users; don't attack others. The discussions and comments are meant to foster conversation, not to create contention.
• Enforcement policy: We understand that members may inadvertently violate rules. However, the following graduated steps will now be in effect:
  1. First violation: Comment is removed.
  2. Second violation: Comment is removed and the user is monitored.
  3. Third violation: The user is removed.

Promotional posts: Lastly, this is a reminder that promotional posts are on IDF Friends. We cannot allow users to post links to GoFundMe or any other donation requests. We also do not allow users to promote their products or businesses. This includes messages to PM for more information.

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