Patients who have Accredo for their gamma and supplies
|Adult Patients with PIDD||
This group will be comprised of patients who are adults who have been diagnosed with PIDD.
|Alabama IDF Friends Group||
A group for patients and their families to exchange information and support
|Arizona IDF Friends Group||
This group is for patients and family of patients in Arizona
A place for Californians to gather and share and make friends
People who get their medication through Caremark
|Central Florida Group||
for patients and thier families who live in central florida
|Chronic Granulomatous Disease (CGD)||
a place for people to talk about CGD
|Chronic Pain Suffers||
A safe but off main forum place to vent and share what it is like to live with Chronic pain
Cleveland area patients and families
A group for PIDD patients and their families in Colorado
|Current Research on PIDDs||
A forum to post and discuss current research findings on PIDDs
Trying to get all friends, family, patients, and volunteers in Florida.
|Gammagard 10% Approved for SubQ||
For patients and/or families using Gammagard 10%
Support for PIDD in the state of Georgia
|Headaches from IGG||
To find the numbers of people who have headaches with IGG; to find out treatments that work and don't work for headache; and ....
Patients and family members to share experiences with Hizentra
|Houston Area PIDD||
Houston Area PID Patients or Parents of PID Patients
|Hyper IgE or Jobs Disease||
Families w/ one or more diagnosed w/ Hyper IgE Syndrome / Jobs Syndrome
|IDF Kentuckiana PIDD Support||
A place for Kentuckianas PIDDers to come and meet and share experiences
|Illinios PIDD group||
A network for PIDD patients/caregivers from Illinois
|Iowa IDF support group||
To provide support to patients
|Kansas/Missouri IDF Support Group||
This group is for Kansas and Missouri PIDD patients and family- all are welcome
|late onset diagnosis CVID||
Twenty years of infections and surgeries before put on IVIG
|Living with both IBD (Crohn's Disease or Ulcerative Colitis) and CVID (or other PIDD)||
For those who are diagnosed with both a primary immunodeficiency disease and inflammatory bowel disease.
For PIDD patients and families in Louisiana or Southern Mississippi
|MA PIDD Patients||
A way to connect those affected with PIDD in MA
For patients who live in the "Old Line State"
|Medicare Issues and PIDDs||
Positive and Negatives of having Medicare
|Michigan IDF Friends Group||
Michigan patient and caregiver group
|Minnesota Families with PIDD||
Minnesota families dealing with PIDD
|NC IDF Friends Group||
This group is for support for patients, families and friends in North Carolina.
Families with NEMO
|New England PIDD||
For anyone in Maine, Massachusetts, New Hampshire, Rhode Island, Vermont
|New Mexico PI Patients and Friends||
No, we're not part of Mexico. Yes, we are part of the United States.
|North Texas PIDD Connection||
Connecting those in the Greater Dallas/Fort Worth Texas area
Connecting folks in Idaho, Montana, Washington, Oregon, Utah
|Ohio - Columbus area||
OPEN TO ALL COLUMBUS AREA PATIENTS AND FAMILIES
|Oklahoma PIDD group||
Anyone with a PIDD that lives in Oklahoma
|PA PIDD Patients and Friends||
A group for PIDD patients, family members, and friends living in the state of Pennsylvania
this group is for all parents who have a child with a pid
|parents with PIDD||
not parents with PIDD kids
|Parents with school issues and how to deal with a school age child with a PIDD||
Place to discuss what works and what doesn't regarding school staff/administration and how the child feels.
|PIDD & Emotions||
A place to discuss the many issues PIDDs and the emotional aspects
|PIDD with Autoimmune Disease||
Patients or Caregivers who Have an Immune Disorder and the Complications of Autoimmune Disease
|PIDD/Emotions Part 2||
A place to discuss issues around PIDD and how id affects us emotionally
|Rhode Island Primary Immune Deficiency Disease Support Group||
Support for Rhode Island and local MA area!
|RN CVID support circle||
For Registered Nurses to exchange information
|SELECTIVE IGM DEFICIENCY||
PEOPLE WITH SUFFER FROM SELECTIVE IGM, IF ANY
A group for sinus sufferers
|South Florida Group||
Patients and families living in South Florida
|Southwest Washington and Portland Metro area PIDD group||
Patients, parents and caregivers - PIDD in all forms. Support, friendship and knowledge is shared.
|Specific Antibody Deficiency(SAD)||
For people with Specific Antibody Deficiency to share symptoms, treatments, and experiences. There are others out there like us!!!
|Spouses of PIDD Patients||
This is a group for spouses and significant others of PIDD patients
|Teachers with PIDD||
Teachers with PIDD and their stories
|Tennessee PIDD Support Group||
This group for patients and their families who live in the Volunteer State
|Texas IDF Friends Group||
A forum where people can come and discuss, and ask questions about, living with or caring for someone with PID. Moderated by a trained IDF volunteer
|United Healthcare Suffers||
Other unfortunate PID patients who have insurance coverage with United Healthcare
|Virginia Support Network for PIDD||
A support network for those with PIDD in the state of VA.
|Washington State PIDD||
Washington residents suffering from CVID; IVIG; SCIG
|Wisconsin PIDD Group||
A group for patients who live in Wisconsin.
|Wiskott-Aldrich Syndrome (WAS)||
A discussion forum and support network for patients, family members and friends dealing with WAS.
|Working with Common Variable Immunodeficiency||
I want to know what kind of jobs people can do with CVID. I've worked in the public until I was diagnosed.
For caregivers and patients with XLA
|Young Adults PIDD Group||
A place for young adults, in their 20s and 30s, to share and learn from one another about their experiences with PIDD.