Has been months now since my bad experience with my rheumatologist and my internal medicine doctor.  I apparently have made it through the "hump" period, the first two months after a cornea transplant are the most problematic time,  I had problems with the first procedure, the patch, but the actual corneal graft has healed fairly well.   I went to a new internal medicine doctor on Wednesday, has been so hard for me to go out because I am so, so tired.  I struggle to even get in the shower, is an ordeal, I am so weak.   I look so bad.   The new doctor I went to hadn't really had time to look through all my files, but he was alarmed at my gigantic umbelical hernia and scheduled an appointment for me with a surgeon for Monday.  I am going to try to make it because I would like to know the procedure, etc, but I don't see how I can have surgery when I am so weak.  The surgeon I am seeing is well known in this area, and I am hoping if I bring copies of the immunological tests that were run last summer, which show my extremely low IGG levels, that maybe he would know who i could see to get followup testing done finally.   I guess the key to all of this is finding the right doctor, I can understand that, I was lucky with the surgeon I ended up with for the cornea transplant, but when a person is so sick how do you manage to do doctor shopping?  I have no idea at this point if the new internal medicine guy I saw last week is going to be okay,,,,,I thought the last one was good yet he turned out to be terrible.  I feel so burned right now from my bad experiences with the rheumatologist, two bad internal medicine, and the immunologist in Milwaukee ( and his passive aggressive nurse) who basically blew me off after talking to the rheumatologist.  

I am definitely sicker now than I was when the two tests were run last summer and at that time, my IGG and IGA were basement levels.  (IGG of 332 the first test, 240 the second)

IGA wasn't as low, 94 and 74.  But anyway, I guess I will meet with the surgeon but I won't let them schedule me for anything.  I have had a hard time posting here because I am so tired and my memory is so bad, I can't focus long enough to put a decent post together.   Social services has had to bring in people at night and twice a week to help with my mother and making sure we get fed since I am too weak now to prepare anything.   So I guess my question is, how does one find a decent doctor?  I did contact some Immune Deficiency Foundation group at one point, they gave me names of a couple doctors in Milwaukee, but for me to get down there in my condition would be nearly impossible.  I hate to be such a kvetch, as some of you have said, none of this is easy.  What is so ironic to me and so maddening is the entire reason my rheumatologist ran the immune tests in the first place, was to see if we could find a way to get me IVIg's, since the only time in my entire life that I have been healthy has been when I was self-paying on them back in my 30's.   But then he turned on me, talks to the recommended Milwaukee Immunologist, and they decide between themselves that I probably don't have PID, that it is most likely secondary since i don't have enough of a history of infections-which also makes NO sense. and I don't get follow up testing done, end up having to have cornea transplant.  

Anyway, I just wanted to say hi and thank all of you, you are an incredible group-amazingly so.  What I would like to know, is what "kind" of doctor have any of you had the best luck with?