Hi,

I'm going to apologise right up front for posting a negative post, but I am fed up!  I just had the worst argument with my husband ever about my stupid subQ drugs and I can't deal anymore with having to do this alone, taking ALL the pain, not being able to go back to full or part (because this stupid culture doesn't want to help woman get back to the workforce after being off for a few years raising kids) time work.

I have CVID and I have kept going through the diagnoses, and now 3 years of treatment ongoing.  NO break, no apology from my father for dropping by announced with some wierd bug that landed me with CVID for life, no magic cheque to help me to keep going without arguments with my husband about me being a leech for his insurance and not working myself.

I am stuck, I am trapped, I have had enough, I am taking myself off these stupid drugs because I can no longer see how they are helping as I keep getting as sick as before the drugs.

Not that anyone actually really gives a shit what I do, because when the crunch comes to the crunch - I am alone on aLL of this.  I don't even know why I'm writing this except to say, that for those support people reading this blog - if you are helping someone you LOVE put the needles in and drugs on a regular basis, be compassionate and realise what the @(#%)*)@( they are going through is not easy.  don't start yelling at your patient during the insertion of the needles or throughout the session, because no matter how bad you think you have it as a support person, I can guarantee that the person sitting opposite you putting in the drugs right now is going to go through worse over the next 12 to 24 hours (and probably does this weekly)- so have a little compassion!!!

Good night everyone.