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Teens and CVID-Worries

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Teens and CVID-Worries

Hi Everyone,

     My son, Hunter has CVID-diagnosed at age 4.  He is going to be 16 soon and I'm worried about his health.  He goes to High School, and last year missed 36 days of school.  I'm thinking I need a 504 plan in place.  He complains of being tired alot and has lots of other complains of not feeling well.  Stomach aches, colds/congestion/cough/sore throat, and joint pain are the usual.  I'm so worried about his future and what college and adulthood will bring.  He looks healthy in every other way-has no allergies or other issues.

     I'm wondering if anyone else is in the same boat?  Does everyone with CVID have chronic fatigue or ever feel good.  Sometimes I tell him he needs more exercise or more sleep, but I don't want to be too hard on him.  My heart breaks every day for what he goes through if he never feels good:(

 

Lisa