Hello,

My name is Lisa and I am the mother of a 6 year old boy diagnosed with CVID.  He receives SCIG at home usually on Thursdays.  I knew from the time he was around 9 months old there was something wrong the hard part was getting someone to listen to me.

Jacob started getting sick at 6 weeks old with sinus infections, respiratory infections and GERD.  At this time we lived in Washington DC.  By the age of 9 months he was already resistant to some antibiotics.  I am not a young mother but I was clueless and would finish a course of antibiotics and then bring him back to the Dr. a couple days later and just say "He's sick again"  Around the time Jacob turned 16 months old I had been doing a lot of research and had my suspicions about PIDD.  My family blew this off and the Dr's. ignored me also.  When my son was 18 moths old we moved to Houston Texas and I started the Dr. rounds here.  Was told from "He's just a kid" to "Its allergies" and was even accused of having Munchhausen by-proxy.  I finally made an appointment with and Allergy, Astmhma and Immunologist where he listened to what I had to say and ordered blood tests.  At this point I had not told anyone about the appointment.  I talked to my husband and  he supported me but was thinking I was being over cautious.  Fortunately I was being over cautious because here we are now a strong 6 year old by with CVID that hates the "pokies" but likes how it makes his body feel.

Lisa