1.  To create a one-on-one chat, simply click on the users name under “Users in Current Room” and start chatting.

2.  To create a public chat room outside of the main chat room, click “Create Room” mark “public” and then alert everyone in the main room that there is a public chat room and its name.  They will have to click “Join Room” and scroll through the list of rooms to find your chat room to join.

3.  For a private chat room, click “Create Room” mark “private” and type the names of the users you would like to invite, separated by commas.  Tell the users in the main room to click “Join Room” and look for your private chat room.

4.  To "ping" a user who is online on IDF Friends but not signed in to chat, just click on the users name under “Online Users” and they will receive a pop up message from you asking them to chat.

For additional questions, please send an e-mail to: idffriends-admin@primaryimmune.org, and put "Chat Question" in the subject line.

First click on the purple “Join Community” button just below the main navigation menu. Second, fill in the required information. Third, check the box at the bottom to “Accept” the Terms and Conditions of the Use. Finally, click the purple “Create new account” button to join the community!

Here is a link to the fully Privacy Policy statement of IDF Friends: http://my.primaryimmune.org/privacypolicy

Start by clicking on the “People” link at the top of the page and you can browse through the members here. You can sort by “Name”, “City”, or “Join Date”. Another good way to find other users to connect with is by clicking the “My Profile” link. On your profile page (under the About Me and PIDD tabs), you can click on things like “State”, “Diagnosis”, and “Treatment” to sort by those categories.

To add a friend, go to a person’s profile page, and on the left-hand side under “Friend Status” click “Become Friend.” You can also add friends when reading a person’s discussion forum posts. Under their name, on the left-hand side is the option to “Add as a Friend”. You can also invite others to join IDF Friends by clicking the purple “Invite Others” button under the main navigation menu on the home page. Don’t worry if you don’t have a big list right away. Once you have two or more contacts, you’ll be able to expand your social network by locating mutual friends and contacting them.

On each user’s profile there is a button under their name that says “send message.” Use this button if you wish to send a private message to that person's Inbox (you don’t have to be a person’s friend to do this). You can also send messages from your Inbox by clicking the purple “View Inbox” button near the top of the homepage, then clicking on the “Write new message” tab. If you don't mind who views your message or you want to share with the entire IDF Friends community, consider posting to a Forum. You can get there at any time through the main navigation menu at the top of the page. To communicate with a smaller group within the IDF Friends community, consider creating or joining a group as described below.

Groups allow you to share information about specific issues that can relate to everything from a particular PIDD disorder to a specific segment of the community (e.g., parents of children with PIDD). You can create or join groups to make announcements, join discussions, or even to share pictures. To join or create a group, just click the purple “Join Group” button located towards the top of the IDF Friends Homepage. You can correspond with your groups by clicking the “My groups” tab, selecting your group, and then using the “Create Story” feature in the navigation menu on the left.

Of all the content options, you will probably find that photos and videos generate the most comments and interaction from our Community. You can add a photo at any time by clicking the purple “Add Photo” button under the main navigation menu at the top of the page. Once you add a photo(s), a Photos tab is added to your profile. You can also "tag" your photos with the names of people you mention and share the photos via a Web link or by email.